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LIGHT UP GREEN

INTERNATIONAL MYOTONIC DYSTROPHY AWARENESS DAY

Event Date

01.09.2026 - 30.09.2026

Charter Hall and Raine Square will light up the Wentworth Building green for International Myotonic Dystrophy Awareness Day landmarks on annually on 15 September. 

Wentworth Lights Up

๐Ÿ“ Wentworth Building

๐Ÿ“… 1 - 30  September, after dark 

๐Ÿ”—   Show your support 

๐Ÿ”—   Find out more about Myotonic Dystrophy

What is Myotonic Dystrophy?

This is the most prevalent form of muscular dystrophy, which itself is a rare debilitating genetic disease and often underdiagnosed or misdiagnosed for years. 

Myotonic dystrophy (DM) is a devastating neuromuscular disorder and the most common cause of adult muscular dystrophy. Patients with this life limiting multi-systemic disorder suffer from muscle wasting, myotonia (inability to relax muscles), cognitive challenges, cataracts, as well as a host of other symptoms.