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LIGHT UP GREEN

INTERNATIONAL MYOTONIC DYSTROPHY AWARENESS DAY

Event Date

15.09.2025

Charter Hall and Raine Square will light up the Wentworth Building green for International Myotonic Dystrophy Awareness Day landmarks on annually on 15 September. 

Wentworth Lights Up

๐Ÿ“ Wentworth Building

๐Ÿ“… 1 - 30  September, after dark 

๐Ÿ”—   Show your support 

๐Ÿ”—   Find out more about Myotonic Dystrophy

What is Myotonic Dystrophy?

This is the most prevalent form of muscular dystrophy, which itself is a rare debilitating genetic disease and often underdiagnosed or misdiagnosed for years. 

Myotonic dystrophy (DM) is a devastating neuromuscular disorder and the most common cause of adult muscular dystrophy. Patients with this life limiting multi-systemic disorder suffer from muscle wasting, myotonia (inability to relax muscles), cognitive challenges, cataracts, as well as a host of other symptoms.